Already suffering with a rare and hereditary form of Ricketts, this young lady exhibits all the qualities of an M.E sufferer and more, extremely bright, highly intelligent, a perfectionist, highly active until one day it all comes to an end with the start of her M.E/CFS. Already suffering with unbearable pain, she defeats all odds, completes a degree in Drama and goes onto set up her own company directing drama where no scripts are written priorly. They are created out of the subject and activity of the participants. With two books pending, the M.E strikes her down just four months into her newly set up company.
In order to understand and come to terms with her pain, she turns her focus to anatomy, studying the oldest form of sculpture, positioning body parts accurately and in accordance with the old rules of sculpting only. Training in this specialised practice can only be found in one place in the UK and is still taught in Florence. Enduring her pain, she studies in the UK and starts to learn to sculpt. The perfectionist and achiever can clearly be seen through her work.
I look forward to hopefully working with this young lady again. We plan to document her story, to work on how she can explain her pain, discuss her life with M.E and share skills. If this is not possible due to her illness, this remains her ‘Unfinished story’.