This week, arranging the photographic shoots for the project has all come together and after some carefully prepared emails following the discussions with Dr Shepherd and head of the M.E Association, I approach the three individual centres. Who amazingly and kindly, all come straight back to me, so this week I was able to define timelines for the shoots with the three institutions. The Clinical Imaging and Sciences centre (CISC0, The Biobank at the London School of Hygiene and Tropical Medicine (LSHTM) and The Quadram Institute of Biosciences (QIB). Referral of the latter coming from the International Invest in ME conference themselves after approaching them in December 2018.
07 Feb. 2019.
Firstly, a Zoom meeting planned over the Xmas period took place with the Quadram Centre where I spoke to Professor Simon Carding Head of the QIB Centre and Andrew Chapple, Head of Media and Communications. We spoke at length about the process, what I wanted to achieve and what they wanted to achieve. It was clearly understood that I should have complete freedom to develop images that were suitable for my FMP, but that I would within that or alongside it support 4 PhD students in communicating their work to a wider audience and in time for the Invest in ME Conference at the end of MAY 2019. We talked about what they thought was important to show from the research work too, such as the scale of work, complexities, perspectives and objectives. That if suitable there would be press releases and other communications timed with a move to the new facilities in Norwich. Dates were set for 26-28th March 19 to photograph the research work and the 4 PhD students.
Secondly, I spoke to Jack Butterworth at LSHTM and we arranged for me to speak with Caroline Kingdon, who manages the participants for collection of tissue and to arrange to see the laboratories at the same time. This all happened a little later in the month. Following this dates for 03-04 April 19. were set to photograph the participants and the laboratory.
Finally, and after emailing Professor Neil Harrison at the CISC, I spoke with Dr. Mahinda Yogarajah, a Neurologist who had been assigned from St. Georges Hospital to support the trial, as funding was placed for both institutions. This happened on the the 9th February, where we had a long discussion about the trial on post-exertion malaise and the impact of ’Introception’ in the brain and potential neurological inflammation show in neuro images produced by their MRI scanner. The Shoot was planned quickly so that I could see the last sufferer go through the trial and was the following week on the 14th February.
I learned a lot from this process and since pre-visits to scout the shoots was out of the question, with my M.E, its as well planned as it can be at this stage, with follow up Zoom meeting to prepare everyone pre-shoot. This helped them get to know me and also for agreed and some to be completed pre-shoots. It also helped with being sensible about ethics and where I will be in direct contact with a participants separate Model release agreements will be signed.
Fees were discussed and since this is a research project for me and part of my M.A, I didn’t feel I could charge a daily rate. This in exchange for the full commitment, access to editorials, the research and archives was extremely helpful. So I have also agreed to license the images for a period of time, probably up to the end of my MA, free of charge but after this date that a charge would be made. Also if any prints were needed that this would be a chargeable cost and in some cases my expenses would be reimbursed.
I started to research my first papers on interoceptive awareness too, to help me understand more clearly Dr Yogarajah’s explanation. I couldnt find any papers written by Dr Yogarajah on the subject specifically.
Projects confirmed I am looking forward to getting on with the project.
RICCARDIA L et al, 2016. Biological Psychology
Interoceptive awareness in patients with functional neurological symptoms. Biological Pscyhology. 113 pp68-74 [online] Available at https://www.sciencedirect.com/science/article/pii/S0301051115300703?via%3Dihub [accessed Feb 8th 2019]